Frontotemporal dementia with amyotrophic lateral sclerosis: a clinical comparison of patients with and without repeat expansions in C9orf72

Snowden, JS; Harris, J; Richardson, A; Rollinson, S; Thompson, JC; Neary, D; Mann, DM; Pickering-Brown, S

HERO ID

2901852

Reference Type

Journal Article

Year

2013

Language

English

PMID

23421625

HERO ID 2901852
In Press No
Year 2013
Title Frontotemporal dementia with amyotrophic lateral sclerosis: a clinical comparison of patients with and without repeat expansions in C9orf72
Authors Snowden, JS; Harris, J; Richardson, A; Rollinson, S; Thompson, JC; Neary, D; Mann, DM; Pickering-Brown, S
Volume 14
Issue 3
Page Numbers 172-176
Abstract Repeat expansions in C9orf72 are a major cause of frontotemporal dementia with amyotrophic lateral sclerosis (FTD-ALS). Not all FTD-ALS patients show expansions. The study examined whether there are clinical differences between FTD-ALS patients with and without expansions in C9orf72. We examined case notes from consecutive FTD-ALS patients, screened for C9orf72 expansions, and documented demographic, neurological, behavioural and cognitive characteristics. Sixty patients met the selection criteria, of whom 11 showed expanded repeats (C9-positive) and 49 did not (C9-negative). A strong male bias was present in the C9-negative group only. A family history of FTD or ALS was recorded in both groups, but was significantly more common in C9-positive cases. Psychotic and irrational behaviours, apathy, disinhibition and loss of empathy were significantly more common in C9-positive cases, with a trend towards more frequent bulbar signs. No differences were found in onset age, presentation (ALS or FTD first), or cognitive changes (language and executive impairments). In conclusion, FTD-ALS is not clinically uniform. Phenotypic differences exist between patients with and without C9orf72 expansions, suggesting that FTD-ALS may be underpinned by distinct neurobiological substrates. The presence of psychiatric symptoms in the context of FTD-ALS should alert clinicians to the possibility of C9orf72 expansions.
Doi 10.3109/21678421.2013.765485
Pmid 23421625
Is Certified Translation No
Dupe Override No
Comments Journal: Amyotrophic lateral sclerosis & frontotemporal degeneration ISSN: 2167-9223
Is Public Yes
Language Text English